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Celeste’s MiniONE®

“She got the MiniONE® Balloon Button G Tube, and it’s always worked so great for her. It’s made learning to eat by mouth a lot easier and more comfortable than having an NG tube.”

Celeste’s Mom

My name is Bree, and I’m Celeste’s mother.

She has a rare genetic condition called hyperinsulinism. Hyperinsulinism makes her blood glucose levels very low. We like to think of it as the opposite of diabetes, which is why it’s funny that she is also more susceptible to developing diabetes later on in life.

Celeste was in the neonatal intensive care unit (NICU) right after she was born, and after she underwent genetic testing around one month old, we found out about her condition. From the moment she was born, she used a feeding tube. She had a nasogastric tube (NG tube) for the first three months of her life. We opted to get a gastrostomy tube (G-tube) to make her feeding tube experience more comfortable for her.

She got the MiniONE® Balloon Button G Tube, and it’s always worked so great for her. It’s made learning to eat by mouth a lot easier and more comfortable than having an NG tube. It’s also been so easy for us to clean and take care of. Having a crazy toddler around can make you worry about the tube getting pulled out, but we’ve never had that happen.

Celeste loves traveling. She loves beaches and playing in the ocean. She also loves exploring outside and going to library storytime. It’s fun watching her become more aware of the feeding tube, and her knowledge about it is great.

We’re excited to continue using the MiniONE® Balloon Button G Tube until she can fully eat by mouth and to use it as an option to deliver juice to her in case of low blood sugar events.